I thought I was going to take a break from blogging for a
day or two after a month of posts but I can’t stop!
Okay, this will be short and there won’t be 30 minutes of
video to watch (“Phew!” says Other Brother, who hasn’t quite caught up yet).
When I set out to do this video project, I wasn’t confident
I could do one for every day. I wanted
to but wasn’t sure if I could pull it off (hence, all the disclaimers in the
first post). It is important to me to do
something every November in support of Epilepsy Awareness Month and creating
the videos seemed to be the most personal way I could explain the impact of
epilepsy.
In a third of people with epilepsy, seizures are uncontrolled. Robert is part of this group and these are
the people I want to focus on. As this group ages, what are the consequences of
all those uncontrolled seizures, head trauma, medications and surgeries?
Robert is just one example of what can happen when seizures
remain uncontrolled. My focus on this is
not meant to scare people who have uncontrolled epilepsy but just the opposite:
Let’s focus on these difficult to control cases so we can raise awareness about
what epilepsy does to a person over a lifetime. Let’s raise some money so
research can be done on this group.
Let’s not forget about these people.
Let’s find a cure.
Let’s not give up.
Robert has not given up – not in the slightest. He prays every day for his seizures to stop.
Robert truly believes his seizures are getting fewer and he has hope and faith
every day.
Every. Single. Day.
If Robert can have hope every day, if Robert can get up
every day and be positive in spite of his legs not working as well as they used
to or his labored breathing making it tough to talk sometimes then I can post a
video every day for Epilepsy Awareness Month.
The links to each post are below. Please let me know if you
have any more questions for Robert or about epilepsy and I will be happy to
post a follow up video.
After all, I don’t want my camera to get rusty!
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